Recent Posts
Celebrating Carol Terry: A Life of Resilience, Leadership, and Impact
Date: June 23, 2026 This June, we celebrate the 80th birthday of Carol Terry — co-founder of the Wilson [...]
My Experience Being Pregnant With Wilson Disease
By Carly Albinder, LCSW, WDA Patient Education and Support Director When I started thinking about getting pregnant, I knew [...]
You Are Not Alone: Kelsey’s Journey With Wilson Disease
By Kelsey Pusillo, WD patient and WDA Patient Ambassador Coordinator Early Symptoms and a Life-Changing Diagnosis During my high [...]
EL-PFDD Meeting for Wilson Disease: Patients and Caregivers Make Their Voices Heard
By Edward Tabor, MD, and Sarah Wicks, JD, MPH The WDA organized and led a daylong “Externally-Led Patient-Focused Drug [...]
Zinc and Me
By Rhonda Rowland, WDA President After 20 years of taking over-the-counter (OTC) zinc to treat my Wilson disease (WD), [...]
How One Family’s Wilson Disease Journey Led to a Transformative Legacy
By Rhonda Rowland, WDA President This past spring, I received a phone call that felt like being told we'd [...]
Orphalan Partners with MAP International and the Wilson Disease Association to Provide Life-Changing Medicine to Underserved Communities
Orphalan SA, a global pharmaceutical company focused on rare diseases, is partnering with MAP International and the Wilson Disease Association (WDA) to provide Cuvrior® (trientine tetrahydrochloride) to patients with Wilson Disease in developing countries. Through this partnership, Orphalan will donate a supply of Cuvrior® to MAP International, a global humanitarian health organization with over 70 years of experience distributing critical medicines to communities in need.
