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Wilson Disease Patient and Caregiver Support Group Meetings

The Wilson Disease Association (WDA) offers virtual support group meetings for patients and caregivers throughout the year. These meetings provide an opportunity for helpful, honest conversation among people affected by Wilson disease and those who care for them.

We currently offer eight support group meetings per year for patients ages 18 and older and caregivers. Four meetings are peer-led and facilitated by Carly Albinder, LCSW, OSW-C. The other four meetings are facilitated by Allyson Galishoff, LCSW. Both facilitators bring professional social work experience and a commitment to supporting people affected by Wilson disease.

Virtual Support Group Facilitators

Carly Albinder

Carly Albinder, LCSW, OSW-C

Carly Albinder is a Wilson disease patient, WDA board member, and licensed clinical social worker. Carly has 11 years of experience as a social worker in New York City and Australia. For the last seven years, she has worked as an oncology social worker at The Mount Sinai Hospital in New York City.

Allyson Galishoff, LCSW

Allyson Galishoff

Allyson Galishoff, LCSW

Allyson Galishoff is a licensed clinical social worker with more than 15 years of experience in counseling and social work. She has extensive experience working with clients ages 21 and up who are facing the challenges of chronic illness. Her most recent experience includes several years as an oncology social worker at The Mount Sinai Hospital in New York City, followed by her current role as a private practice clinician. Her work includes supporting patients, caregivers, and family members experiencing a wide variety of serious illnesses.

Register in advance for each meeting. After registering, you will receive a confirmation email with information about joining the meeting.

Click Here to Register

 

 

2026 Meetings:

Carly Albinder sessions:
September 10
December 10

Allyson Galishoff sessions:
October 14

All meetings are held from 8 to 9:30 p.m. Eastern time.

2027 Meetings:

Carly Albinder sessions:
March 11
June 10
September 9
December 9

Allyson Galishoff sessions:
January 13
April 14
July 14
October 13

All meetings are held from 8 to 9:30 p.m. Eastern time.

We welcome patients and caregivers to join these supportive conversations throughout the year.

Other Resources

An additional source of information and support is Inspire. Visit the Wilson Disease Association Support Community.

You can also look for Wilson disease groups on Facebook that are established and monitored by patients.

Important Note

WDA support resources are supported by volunteers and facilitators. Information shared in these forums is for general educational and peer support purposes only. Please consult your physician for medical advice.

Donations

Why Your Donation Matters

Your donation to the Wilson Disease Association does more than keep the lights on—it powers education, awareness and action. With your support, we’re able to maintain vital resources like this website, produce trusted educational materials, fund critical research and host events that bring together patients, caregivers and medical professionals. Most importantly, your generosity helps raise awareness so more people are diagnosed earlier and treated effectively—giving them the best chance at a full, healthy life.

When you give, you’re not just supporting an organization—you’re joining a powerful movement to change the future of Wilson disease. You’ll stay informed about the latest in research and treatment, gain access to exclusive webinars and educational resources, and remain connected to a global community that understands. For more than 40 years, our shared commitment has fueled advances in care, deepened understanding, and amplified the voices of those affected by Wilson disease. Together, we’re building a stronger, more informed future.

WILSON DISEASE ASSOCIATION

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