Copper Conscious Eating Webinar

Copper Conscious Eating
We are having a series of webinars about this very important topic.  The first in the series is on Saturday, July 30th at noon ET.

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You can now view the webinar on demand by registering or if already registered, following the register link and clicking on the already registered oval button.

Wilson Disease Patient Support Group Meetings

Wilson Disease Patient Support Group Meetings
The Covid-19 pandemic made everyone realize how important it is to have contact with other people affected by Wilson Disease. We missed in-person meetings too. Fortunately, we have technology and a group leader willing to help us launch Zoom support group meetings for patients and caregivers. We’ve set a calendar for our initial three meetings. What we hope for are helpful, honest interactions between patients and caregivers to support each other.

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The Big Wow is an annual fundraiser held sometime in the fall of the year. It gives family members of patients and patients a chance to tell their story of Wilson Disease to raise awareness of the disease. All of the money raised with this fundraiser goes to fund the Patient Registry Research Project. Amazingly, small family groups from almost anywhere could raise hundreds of thousands of dollars while telling their stories. We named these people the Wilson’s Warriors and we share their stories on our website on the stories tab.

Hey, Big wow volunteers, whether you can have an in-person Big wow or a virtual one, we are ready to help you and look forward to your suggestions. Contact [email protected]

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Wilson’s Warriors

Stories of warriors touched by Wilson’s Disease and how they fought back by rallying people they know to walk with them and raise money for the patient registry.

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Your support allows the WDA to maintain this website, produce educational materials, support research, and hold meetings for people living with WD, their families, and the healthcare community.

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As a member, you have the opportunity to communicate your concerns, share your experiences, learn about the most recent advances in Wilson disease treatment and research, and contribute to important decisions that need to be made so the WDA can be a strong patient advocacy group

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