Wilson Disease Centers of Excellence
The WDA Centers of Excellence provide physicians who are well trained in the diagnosis and treatment of Wilson’s Disease, physician training and research regarding Wilson disease, broad services needed by Wilson Disease patients and their families, and technical support required by patients (including laboratory metal analysis).
To learn more about the WDAs criteria in designating a Center of Excellence, click here. If your institution is interested in becoming a Center of Excellence, please contact Mary Graper at [email protected].
United States Centers of Excellence
Baylor College –Texas Children’s Hospital and St Luke’s Hospital
Center Directors:
John Vierling, MD Adult Hepatology
[email protected]
832 355 1400 (Office, 24/7)
713-610-2479 (FAX)
[email protected]
832-822-3671
Other Team Members:UNOS Medical Directors of liver transplantation- Rise Stribling, MD Hepatology/Baylor-St Luke’s Medical Center (adult), Surgical Director of liver transplantation- John Goss, MD Transplant Surgery, Clinicians- Norman Sussman, MD Adult Hepatology/GI , Saira Khaderi, MD Adult Hepatology/GI, Ryan Himes, MD Pediatric Hepatology/GI ,Daniel Leung, MD, BS Pediatric Hepatology/GI, Joseph Jankovic, MD Adult Neurology/Movement disorder, Mered Parnes, MD, BA Pediatric Neurology/Movement disorder, Brendan Lee, MD, Ph.D. Genetics, David Coats, MD Ophthalmology, Ayse Arikan, MD Nephrology, Intensive care (Extracorporeal Liver Support), Nutritionist- Stacy Beer, MPH, RD, LD Liver Nutritionist, Neuropsychologist- Susan Caudle, M.A, B.A. Psychology, Social worker- Lucero Gonzalez, LCSW Social work, Child life specialist- Holly Peckover, MS, CCLS Child Life, Psychiatry- TBD Psychiatry Section, Genetic counselor- TBD Genetic counseling, Administration- Sara Gonzalez-Quezada,Program administrator
University of California at Los Angeles
Director – Jeff Bronstein, MD, PhD; Coordinator – Henrietta Salazar
UCLA Neurology Department
710 Westwood Plaza Suite C128
Los Angeles, CA 90095-1769
For appointments: Henrietta: (310) 206-9799
Fax: (310) 206-9819
E-mail: [email protected]
Other Team Members: Sammy Saab, MD – Hepatology and Hepatic Transplantation; Arik Johnson – Psychologist; Jeff Bronstein-Movement Disorders, Neurology; Joseph Demer, MD- Opthalmology; Dana Hunnes PhD, MPH, RD- Dietition/Nutritional Consultant; Diane Yang- Research Coordinator
University of Michigan Hospital
Director – Fred Askari, M.D., Ph.D.
Associate Professor
Liver Clinic
1st floor Taubman Center Area G
Ann Arbor, Michigan 48109
Phone: 800-333-9013
Fax: 734-763-4574
Appointments 800-333-9013
E-mail: [email protected]
Other Team Members: Jeffrey Innis, MD, PhD – Genetic Counselor; Fred Askari, M.D., PhD – Section of Transplantation and Hepatology, Martha Carlson MD, PhD – Pediatrics; Matthew Lorincz, MD, PhD (Adult) and Martha Carlson, MD, PhD(Pediatric) – Movement Disorder Specialist, Neurology; Jonathon Trobe, MD – Opthalmology; Scot Winder, MD – Psychiatrist; Elizabeth Kovan – Research Coordinatior; : Karen Kluin ,MS – Speech Therapy; Kelly Shehan,MS – Dietician
Northwestern University
Director
Danny Bega, MD, MSCI
Associate Professor of Neurology
Division of Movement Disorders
Feinberg School of Medicine
259 E Erie St, Suite 1900
Chicago, IL 60611
Co-Director
Richard M. Green, MD
Chief, Division of Hepatology
Associate Professor of Medicine
Feinberg School of Medicine
Appointments: 312-695-7950
Fax: 312-695-5747
Contacts:
Margaret Sullivan, RN (clinical nurse)
Emily Zivin, LCSW (social work)
Location:
Lavin Pavillion, 16th Floor
259 E Erie St
Chicago, IL 60611
https://www.nm.org/conditions-and-care-areas/neurosciences/movement-disorders/wilson-disease
Other Team Members:
Lisa Kinsley – Genetic Counselor
Seattle Children’s Hospital
Sihoun Hahn, M.D., Ph.D., Director
Pediatrics; Director, Biochemical Genetics Program
Seattle Children’s Hospital
4800 Sand Point Way NE, Mailstop: B-6594
Seattle, WA 98105
Phone: 206-987-7610
E-Mail: [email protected]
The pediatric team will see adult patients at the University of Washington. For information/appointments (pediatric and adult) please contact:
Mary Moran E-mail: [email protected]
Appointments: Fax referral and records to (206) 985-3121
Other Team Members: Simon Horslen, MB ChB FRCPCH – Director of Transplantation, Pediatric Hepatologist, Pediatric Transplant Hepatologist; Renuka Bhattacharya, MD – Adult Hepatologist; Dararat (Pam) Mingbunjerdsuk, MD – Movement Disorder Specialist, Neurology; Ali Samii, MD – Adult Neurology; Avery Weiss, MD – Opthalmology; Nina de Lacy, MD, MBA – Psychiatry; Melissa Edwar, RD and Sarah Sullivan, RD – Metabolic Nutitionists; Andrea Barry-Smith – Social Work, Edie Anyieni, RN – Nursing; Genetic Counseling – TBD; Mary Moran – Program Administrator.
Atrium Health Wake Forest Baptist
Sean R. Rudnick, MD., Assistant Professor
Department of Internal Medicine
Section on Gastroenterology & Hepatology
Medical Director – Hepatology
E-Mail: [email protected]
For appointments contact:
Dee Faust
[email protected]
Phone: (336) 713-1442
Yale University Medical Center
Dr. Michael Schilsky, Director
Yale University School of Medicine
333 Cedar Street/1080 LMP
P.O. Box 208019
New Haven, CT 06520-8019
E-Mail: [email protected]
Fed Ex Address:
One Gilbert StreetFMP Bldg.,
Room FMP 408
New Haven, CT 06519
For Appointments: Naeroby, phone: 203-737-1592 fax: 203-737-1592
Other Team Members: Uyen To, MD – hepatology, Nigel Bamford, MD – pediatric neurologist, David Mulligan MD, Section of Transplantation and Immunology, Udeme Ekong MD, Pamela Valentino, MD – Pediatric Hepatologist, Pediatric Transplant Hepatologist; Amar Patel, MD – Movement Disorder Specialist, Neurology; Paula Zimbrean M.D. – Psychiatrists; Ilke Nabantoglu – Liver Pathologist; Ricarda Tomlin – Research Coordination; Lenore Hammers LCSW – Adult Social Worker, Michael Joyce LCSW – Pediatric Social Worker; Anne Marie Rivard NPH RD- Registered Worker; Anne Marie Rivard NPH RD- Registered Dietician, Dr. Uyen To, Adult Hepatology, Dr. Rima Fawaz and Pamela Valentino, Pediatric Hepatology, Dr. Amar Patel, Movement Disorders, Neurology, Dr. Paula Zimbrean, Psychiatry.
Watch: Yale Center of Excellence featured at the AASLD Liver Meeting
Outside the United States Centers of Excellence
Great Britain – South East Coast England
Director/Coordinator: Professor Aftab Ala, Director,Institute of Health and Research (NIHR) Lead for Hepatology South East Coast England, Consultant Gastroenterologist and Hepatologist, Department of Gastroenterology and Hepatology, Royal Surrey County Hospital NHS Foundation Trust and Department of Clinical and Experimental Medicine, University of Surrey, Guildford, Surrey
phone: 0148357112 extension 6990
Team Members: Professor Aftab Ala –Hepatology; Royal Free Hospital NHS Foundation Trust, London Kings College Hospital NHS Foundation Trust, London –Hepatic Transplantation; Dr Jan Coebergh, MBBS FRCP –Movement Disorders; Dr Sofia Khan, MBBS MDRes FRCP –Neurology; Professor Simon Taylor (MB ChB PhD FCOpth) –Ophthalmology; Dr Ozan Hancip MBBS MRCPaed –Pediatrics; Dr Ranjit Mahanta (MBBS MRCPsych MSc DGM) –Psychiatric; Dr Charmian Banks and Dr Kalliopi Alexandropoulou – Dietitians/Nutritional Consultants; The physical / rehabilitation / occupational therapy teams will use their recognised expertise in the management of patients with Wilson disease, paticularly in those affected by neurolgical manifestations of Wilson disease – Physical and Rehabilitation Therapy; Sarah Martin –Research Coordinator; There are established expert and dedicated social services and Team who will work with our patients to help in the challenges of wilson disease –Social Work; The speech therapy team is fully integrated into the overarching stroke services and will be available for assessment and management –Speech Therapy; Dr Chris Harrington BSc (Hon), MSc, PhD, MRSC – Pathology and Diagnostics; Dr Nayana Lahiri MBBS MRCP – Consultant Clinical Geneticist; Professor Simon de.Lusignan s. BSc, MB BS, MSc, MD(Res), DRCOG, FHEA, FBCS CITP, FRCGP (email [email protected]) -Primary Care & Clinical Informatics / Health Care Management / Clinical and Experimental Medicine; Dr Claire Kelly MBChB MRCP – Clinical Research Fellow (National Institute for Health and Research); Dr Marinos Pericleous MBBS BSc MRCP – Clinical Research Fellow.
Heidelberg, Germany
Director/Coordinator
Prof. Karl Heinz Weiss, MD
Internal Medicine IV
Im Neuenheimer Feld 410
69120 Heidelberg Germany
For Appointments:
Mrs. Alexandra Becker
Internal Medicine IV
Im Neuenheimer Feld 410
69120 Heidelberg Germany
Phone: +49 6221 56-6538
Other Team Members: Prof. Markus Weiler, MD PhD – Movement Disorders; Prof. Dr. med. Gerd U. Auffarth, – MD Ophthalmology; Prof. Dr. med. G.F. Hoffmann, MD – Pediatrics; Prof. Dr. Sabine Herpertz, MD – Psychiatry; Dr. Ulrike Zech, MD – Dietitians/Nutritional Consultants; Regina Respondek – Physical and Rehabilitation Therapy; Jessica Langel – Research Coordinator; Mrs. Catrin Bauer, Mrs. Regine Remmert, Mrs. Sandra Wendland – Social Work; Mrs. Nele Wieser, Mrs. Cinja Huber – Speech Therapy; Dr. Med. Petra Wagenlechner, MD – Other.
India – K.E.M. Hospital
Director – Dr. Ashish Bavdekar
Associate Professor
Consultant Pediatric Gastroenterologist
Liver and Gastroenterology Unit
Department of Pediatrics
T.D.H. Building, Ground Floor
K.E.M. Hospital, Rasta Peth
Pune 411011
India
Phone: 91-20-66037342
Mobile: 98220 56174
Fax: 91-020-26125603
E-mail: [email protected] or [email protected]
Clinics for Wilson Disease:
Mondays and Thursdays 11:00 a.m. – 1:00 p.m.
Other Team Members: Dr. Ashish Bavdekar – Pediatric Hepatology & Liver Transplant; Dr. Suhas Wagle – Adult Hepatology; Dr. Pradeep Diwate – Movement Disorders & Neurology; Dr. Abhijeet Botre – Pediatric Neurology; Dr. Jyoti Sharma – Pediatric Nephrology; Dr. Sanjay Shah – Ophthalmology; Dr. Vasudeo Parlikar – Psychiatry; Mrs. Smita Kokitkar – Dietitian; Mrs. Bharati Patil – Physical and Rehabilitation Therapy; Dr. Shruti Inamdar – Research Coordinator; Mr. Mahendra Hoge – Social Work
Jaslok Hospital and Research Center
Director – Dr. Aabha Nagral,
Consultant Adult and Pediatric Hepatologist
O-18, Bhavna Building 2nd floor
Veer Savarkar Road
Prabhadevi Clinic
Mumbai-400025
India
For appointments: (+91)22 24222160
E-mail: [email protected]
Clinics for Wilson Disease Patients:
Monday, Wednesday and Friday: (4:00 p.m. to 6:00 p.m.)
For appointments, phone: 91-22- 24222160 (after 4 pm)
Other Team Members: Dr. Aahba Nagral – Hepatic Transplantation; Dr. Pettarusp Wadia– Movement Disorders & Neurology; Dr. Atul Ursekar– Ophthalmology; Dr. Fazal Nabi – Pediatrics; Dr. Amit Desai – Psychiatry; Suvarna Sawant – Dietitian; Dr. Ria Mansukhani – Physical and Rehabilitation Therapy; Dr. Priya Malde – Research Coordinator: Bakul Parulekar-Speech Therapy; Bhavna Shah-Social Worker.