Date: June 23, 2026 This June, we celebrate the 80th birthday of Carol Terry — co-founder of the Wilson Disease Association (WDA), longtime board member, and a driving force behind a community that has supported thousands of patients and families worldwide. Carol’s journey with Wilson disease began in 1973, [...]

By Carly Albinder, LCSW, WDA Patient Education and Support Director When I started thinking about getting pregnant, I knew my journey might look a bit different than most. Living with both Wilson disease and ulcerative colitis meant I would be considered high-risk, which felt daunting. Yet, my experience turned [...]

By Kelsey Pusillo, WD patient and WDA Patient Ambassador Coordinator Early Symptoms and a Life-Changing Diagnosis During my high school graduation, I was sick with what was initially thought to be mono. Later, I would learn it was actually the onset of my Wilson disease. Just three weeks into [...]

By Edward Tabor, MD, and Sarah Wicks, JD, MPH The WDA organized and led a daylong “Externally-Led Patient-Focused Drug Development” (EL-PFDD) meeting on January 29, 2026, designed to inform the FDA and other key stakeholders, including drug developers and healthcare providers, about the challenges facing patients living with Wilson [...]

By Rhonda Rowland, WDA President After 20 years of taking over-the-counter (OTC) zinc to treat my Wilson disease (WD), I switched to prescription Galzin. Why? Two reasons. First, as President of the Wilson Disease Association (WDA), I wanted to better understand how specialty pharmacies work. Prescription zinc acetate is [...]

By Rhonda Rowland, WDA President This past spring, I received a phone call that felt like being told we'd won the lottery. Andy Spaulding was on the line with extraordinary news: his late mother's charitable trust was leaving nearly $750,000 to the Wilson Disease Association. In the organization's 42-year [...]