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Videos and Podcasts

Explore video and podcast content created for the Wilson disease community. This page features conversations, educational programs, webinars, meeting recordings, and other multimedia content for patients, caregivers, families, healthcare professionals, advocates, and partners.

These programs offer trusted information, community perspectives, and updates on Wilson disease care, treatment, research, and support.

Featured Series: Copper & Clarity

Orphalon

The Wilson Disease Association (WDA) has collaborated with Orphalan to create a new podcast series, “Copper & Clarity: Conversations About Wilson Disease.” The series brings together informed perspectives on Wilson disease through accessible conversations for patients, caregivers, healthcare professionals, and other members of the Wilson disease community.

New episodes will be released from September through December 2026, with links added to this page as they become available.

Across the series, conversations will explore topics related to Wilson disease care, treatment, research, and community support.

Release Schedule

Episode 1: Delayed Diagnosis: Missed, Dismissed, and Diagnosed
 Featuring:

  • Michael L. Schilsky, MD, FAASLD — Director, Wilson Disease Center of Excellence at Yale University Medical Center
  • Danette Roberson — Wilson disease patient and liver transplant recipient
    Release date: September 1, 2026

Episode 2: More Than Symptoms: Everyday Life with Wilson Disease
 Featuring:

  • Jean Marie — Wilson disease patient
  • Kim Mercurio — caregiver and mother of Jimmy, who has Wilson disease
    Release date: September 29, 2026

Episode 3: Mind, Mood, and the Copper Connection
 Featuring:

  • Jason Margolesky, MD, FAAN — Director, Wilson Disease Center of Excellence at University of Miami/Jackson Health Systems
  • Christina Lee, MD, MPH — Consultation-Liaison Psychiatrist, UC Davis Health; Wilson Disease Center of Excellence team member
    Release date: November 3, 2026

Episode 4: Activating Your Voice: Self-Advocacy and Wilson Disease
 Featuring:

  • Emily Zivin, MSW, LCSW — Social Worker, Northwestern Medicine Wilson Disease Center of Excellence
  • Arjun Ravichandra — Wilson disease patient
    Release date: December 4, 2026

EL-PFDD Meeting Video

Watch WDA’s Externally Led Patient-Focused Drug Development meeting to hear directly from people living with Wilson disease, caregivers, family members, and other members of the Wilson disease community.

This meeting highlights the lived experiences, treatment priorities, and unmet needs shared by the Wilson disease community and helps inform regulators, researchers, clinicians, and drug developers working to advance Wilson disease care and treatment.

Copper Conscious Cookbook Webinar

The Copper Conscious Cookbook webinar offers practical guidance on copper-conscious nutrition for individuals and families affected by Wilson disease, recognizing nutrition as one component of Wilson disease management.

This educational program features discussion of copper-conscious eating, food choices, and related considerations for people living with Wilson disease.

New Guidance for the Diagnosis, Treatment, and Management of Wilson Disease

This webinar discusses updated guidance for the diagnosis, treatment, and management of Wilson disease.

The program provides information for patients, caregivers, and healthcare professionals about current approaches to recognizing, treating, and monitoring Wilson disease.

Copper Conscious Eating

This webinar explains what copper-conscious eating can mean for people living with Wilson disease and offers practical guidance for patients, families, registered dietitian nutritionists, and clinicians.

The program can help community members better understand nutrition considerations that may be part of Wilson disease care.

Gene Therapy

This webinar explores gene therapy research in Wilson disease, including potential treatment approaches, clinical trial considerations, and what these developments may mean for the future of Wilson disease care.

Explore More Videos

Visit WDA’s YouTube channel for additional patient stories, past conference recordings, educational programs, and other videos from the Wilson disease community.

Donations

Why Your Donation Matters

Your donation to the Wilson Disease Association does more than keep the lights on—it powers education, awareness and action. With your support, we’re able to maintain vital resources like this website, produce trusted educational materials, fund critical research and host events that bring together patients, caregivers and medical professionals. Most importantly, your generosity helps raise awareness so more people are diagnosed earlier and treated effectively—giving them the best chance at a full, healthy life.

When you give, you’re not just supporting an organization—you’re joining a powerful movement to change the future of Wilson disease. You’ll stay informed about the latest in research and treatment, gain access to exclusive webinars and educational resources, and remain connected to a global community that understands. For more than 40 years, our shared commitment has fueled advances in care, deepened understanding, and amplified the voices of those affected by Wilson disease. Together, we’re building a stronger, more informed future.

WILSON DISEASE ASSOCIATION

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