Recent Posts
Celebrating Carol Terry: A Life of Resilience, Leadership, and Impact
Date: June 23, 2026 This June, we celebrate the 80th birthday of Carol Terry — co-founder of the Wilson [...]
My Experience Being Pregnant With Wilson Disease
By Carly Albinder, LCSW, WDA Patient Education and Support Director When I started thinking about getting pregnant, I knew [...]
You Are Not Alone: Kelsey’s Journey With Wilson Disease
By Kelsey Pusillo, WD patient and WDA Patient Ambassador Coordinator Early Symptoms and a Life-Changing Diagnosis During my high [...]
EL-PFDD Meeting for Wilson Disease: Patients and Caregivers Make Their Voices Heard
By Edward Tabor, MD, and Sarah Wicks, JD, MPH The WDA organized and led a daylong “Externally-Led Patient-Focused Drug [...]
Zinc and Me
By Rhonda Rowland, WDA President After 20 years of taking over-the-counter (OTC) zinc to treat my Wilson disease (WD), [...]
How One Family’s Wilson Disease Journey Led to a Transformative Legacy
By Rhonda Rowland, WDA President This past spring, I received a phone call that felt like being told we'd [...]
One Step Closer to a Newborn Screening Test for Wilson Disease
Key Proteo Submits De Novo Application to FDA for its First Newborn Screening Kit
Potential to be the first IVD for the screening of Wilson Disease, Wiskott-Aldrich Syndrome, X-linked Agammaglobulinemia and Adenosine Deaminase Deficiency
