Recent News and Updates
Ultragenyx Discontinues Wilson Disease Gene Therapy Program
FOR IMMEDIATE RELEASE November 4, 2026 The Wilson Disease Association (WDA) is disappointed to share that Ultragenyx Pharmaceutical Inc. has announced its decision to discontinue further development of UX701, an investigational gene therapy for Wilson [...]
Wilson Disease Association Releases Voice of the Patient Report Highlighting Needs in Diagnosis, Treatment, and Daily Life
Report captures perspectives shared by patients, caregivers, and families during Externally-Led Patient-Focused Drug Development meeting August 31, 2026 — The Wilson Disease Association has released the Wilson Disease Voice of the Patient report, a [...]
Wilson Disease Association Announces Copper Conscious Cookbook Now Available on Amazon
FOR IMMEDIATE RELEASE Wilson Disease Association Announces Copper Conscious Cookbook Now Available on Amazon December 10, 2025 — The Wilson Disease Association (WDA) is pleased to announce that the highly anticipated Copper Conscious Cookbook [...]
Wilson Disease Association marks 2nd Wilson Disease Awareness Day
The Wilson Disease Association (WDA) is proud to mark the 2nd International Wilson Disease Awareness Day on December 6, 2025, celebrating a year of meaningful progress for the global Wilson disease community. Wilson disease [...]
Amplifying the Voices of Wilson Disease Patients & Caregivers: Be a Part of the WDA’s Virtual Externally-Led Patient-Focused Drug Development Meeting
When it comes to the future of Wilson disease (WD) treatments, patients and caregivers will now have a seat at the table. The Wilson Disease Association (WDA) invites everyone with an interest in WD [...]
World’s First Newborn Screening for Wilson Disease
Washington State Will Adopt World’s First Newborn Screening for Wilson Disease, Pioneered by Decades of Research From Seattle Children’s Doctor Click here to read more.


