Wilson Disease Association marks 2nd Wilson Disease Awareness Day

The Wilson Disease Association (WDA) is proud to mark the 2nd International Wilson Disease Awareness Day on December 6, 2025, celebrating a year of meaningful progress for the global Wilson disease community.

Wilson disease is a rare genetic disorder affecting approximately 1 in 30,000 people worldwide. It causes copper to accumulate in the liver, brain, and other organs, leading to serious health complications if untreated. Early diagnosis and treatment are crucial.

Wilson Disease Awareness Day honors the birthday of Dr. Samuel Alexander Kinnier Wilson, the American-born British neurologist who discovered this rare genetic liver disease in 1911.

Over the past year, the WDA has advanced its mission through several major initiatives that strengthened education, advocacy, and community connection. To mark International Wilson Disease Awareness Day, the WDA has planned several activities including:

• Community Webinar: WDA will host a virtual one-hour webinar on December 6 at 10 am EST where patients, caregivers and advocates can learn more about participating in the upcoming landmark Externally Led – Patient Focused Drug Development Meeting (EL-PFDD).In this webinar, you will meet the team preparing the WD community for the meeting and the video panelists, learn what to expect during the meeting and learn how you can participate by calling in live, answering live polling questions and sharing comments for discussion the Voice of the Patient report

• Launch of the “Copper Conscious” Cookbook: The WDA has published the Copper Conscious: A Wilson Disease Cookbook, a unique resource featuring guidance and copper-conscious recipes from dieticians and nutrition experts. The cookbook supports individuals and families in managing the dietary challenges of living with Wilson disease while promoting healthy eating. The Copper Conscious Cookbook is available for purchase on Amazon starting December 6th for $12.99 and the e-book will be $7.99!

• Global Awareness and Collaboration: Through partnerships with patient groups including the Wilson Disease Global Alliance (WDGA), researchers, medical professionals and industry partners worldwide, the WDA continues to raise awareness of Wilson disease, promote early diagnosis, and advocate for improved access to care and treatments.

• A virtual campaign for Wilson warriors: Be part of a global viral campaign by getting a photo or video of yourself making the “W” sign with your hands. It stands for Wilson and warrior.

The WDA invites the global community to join the awareness movement by sharing stories and photos on social media using #WilsonDiseaseAwarenessDay

As we celebrate the 2nd International Wilson Disease Awareness Day, we recognize the incredible strength and unity of our community,” said Rhonda Rowland, President of the Wilson Disease Association. “Each initiative this year reflects our commitment to amplifying patient voices, advancing research, and supporting patients and caregivers.”

For more information, visit www.wilsondisease.org or email Alice.Williams@wilsonsdisease.org or Rhonda.Rowland@wilsonsdisease.org

About the Wilson Disease Association

The Wilson Disease Association (WDA) is the only U.S.-based nonprofit dedicated to supporting people affected by Wilson disease worldwide. The WDA funds research, educates patients and caregivers, and raises awareness among the public and medical professionals. Its vision is to unmask the challenges of Wilson disease and unleash the promise of a cure. For more information, visit www.wilsondisease.org