Recent News and Updates

2804, 2023

Alexion’s Wilson Disease Drug Program Terminated

April 28, 2023|

April 28, 2023 The Wilson Disease Association (WDA) is disappointed to share that Alexion, AstraZeneca Rare Disease decided to terminate its ALXN1840 program. Alexion pursued rigorous scientific research in its effort to bring forward a [...]

2004, 2023

New Drug Launched

April 20, 2023|

Orphalan announces US commercial launch of Cuvrior™ for the treatment of Wilson disease. Read the press release.

2703, 2023

A New Guidance on Wilson Disease

March 27, 2023|

Diagnosis|Treatment|Monitoring By Rhonda Rowland This is a first for Wilson disease (WD). The new Practice Guidance on WD is a careful balance of combining limited scientific evidence with expert experience to create a tool for [...]

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Why Your Donation Matters

Your donation to the Wilson Disease Association does more than keep the lights on—it powers education, awareness and action. With your support, we’re able to maintain vital resources like this website, produce trusted educational materials, fund critical research and host events that bring together patients, caregivers and medical professionals. Most importantly, your generosity helps raise awareness so more people are diagnosed earlier and treated effectively—giving them the best chance at a full, healthy life.

When you give, you’re not just supporting an organization—you’re joining a powerful movement to change the future of Wilson disease. You’ll stay informed about the latest in research and treatment, gain access to exclusive webinars and educational resources, and remain connected to a global community that understands. For more than 40 years, our shared commitment has fueled advances in care, deepened understanding, and amplified the voices of those affected by Wilson disease. Together, we’re building a stronger, more informed future.

WILSON DISEASE ASSOCIATION

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