Recent News and Updates
How Mark Cuban helped a Cherry Hill business exec cut prices for the drug that keeps him alive
For decades, the drug that keeps Drew Katz alive sold for less than $1 a pill. […]
WD Low Cost Drugs
Read the press release.
Request for Volunteers
Vivet Therapeutics, a biotechnology company researching a potential treatment for Wilson disease, is looking to speak with patients and caregivers in the Wilson disease community. Read More
Alexion’s Wilson Disease Drug Program Terminated
April 28, 2023 The Wilson Disease Association (WDA) is disappointed to share that Alexion, AstraZeneca Rare Disease decided to terminate its ALXN1840 program. Alexion pursued rigorous scientific research in its effort to bring forward a [...]
New Drug Launched
Orphalan announces US commercial launch of Cuvrior™ for the treatment of Wilson disease. Read the press release.
Meet the Inaugural Gene Therapy Candidates
The two gene therapy clinical trials for Wilson disease (WD) launched by Ultragenyx and Vivet Therapeutics are underway! Here, we introduce the WD community to two people who are trailblazers in these studies that will [...]