Recent News and Updates

206, 2023

Request for Volunteers

June 2, 2023|

Vivet Therapeutics, a biotechnology company researching a potential treatment for Wilson disease, is looking to speak with patients and caregivers in the Wilson disease community. Read More

2804, 2023

Alexion’s Wilson Disease Drug Program Terminated

April 28, 2023|

April 28, 2023 The Wilson Disease Association (WDA) is disappointed to share that Alexion, AstraZeneca Rare Disease decided to terminate its ALXN1840 program. Alexion pursued rigorous scientific research in its effort to bring forward a [...]

2004, 2023

New Drug Launched

April 20, 2023|

Orphalan announces US commercial launch of Cuvrior™ for the treatment of Wilson disease. Read the press release.

2703, 2023

Meet the Inaugural Gene Therapy Candidates

March 27, 2023|

The two gene therapy clinical trials for Wilson disease (WD) launched by Ultragenyx and Vivet Therapeutics are underway! Here, we introduce the WD community to two people who are trailblazers in these studies that will [...]

Donations

Your support allows the WDA to maintain this website, produce educational materials, support research, and hold meetings for people living with WD, their families, and the healthcare community.

Membership

As a member, you have the opportunity to communicate your concerns, share your experiences, learn about the most recent advances in Wilson disease treatment and research, and contribute to important decisions that need to be made so the WDA can be a strong patient advocacy group

WILSON DISEASE ASSOCIATION

Contact Us