We always refer patients to our Centers of Excellence first. If that is not possible click below to see lists of physicians who have experience diagnosing and treating WD patients and support contacts who may be able to assist you.
Patient Assistance Programs
Drug assistance in US
Orphalan US Patient Assistance Program for CuvriorTM: Navigator Program
You can find more information at www.cuvrior.com or you can call and speak with one of our patient services care coordinators at 1-877-995-ORPH (6774)
The Navigator Program, Patient Support by Orphalan, is intended to provide access-related education and financial support offerings (when applicable and appropriate) to patients who meet certain program requirements in an effort to support them throughout their treatment journey. Find information about the CUVRIOR NAVIGATOR patient assistance program here: https://www.cuvrior.com/taking-cuvrior/patient-support-program/
Bausch U.S. Patient Assistance Program for Cuprimine and Syprine: WD Rx Access
You can find more information on http://www.wdrxaccess.com
It is important to know that patients need to re-enroll every year for patient assistance.
Galzin Assistance if you are on Medicare
If your claim for Galzin is rejected here is a sample appeal letter your doctor can use to help you deal with Medicare.
Drug Assistance Outside the US
The WDA has partnered with MAP International and Bausch to support an international medication assistance program for Cuprimine® and Syprine®. Limited amounts of these medications are generously donated by Bausch and shipped, at the request of the WDA, by MAP International. Shipping costs for this valuable program are covered by the WDA. To apply for this program please contact the Wilson Disease Association at info@Wilsonsdisease.org.
Shipping Trientine to India through MAP International
The WDA is no longer able to ship Trientine to India through MAP International due to Indian rules. If you have any questions please contact:
Dr Seema Alam
Prof Pediatric Hepatology
Department of Pediatric Hepatology
Institute of Liver and Biliary Sciences
D 1 Vasant Kunj
New Delhi 110070
seema_alam@hotmail.com
M +919540951008
Angel Flight NE
Angel Flight NEAngel Flight NE, a 501(c)3 nonprofit organization that coordinates free air and ground transportation for medically stable patients seeking medical care for healthcare conditions including rare and ultra-rare diseases that requires them to travel hundreds if not thousands of miles for the specialized care they need.
Our vital mission is made possible thru the generosity of our volunteer pilots and commercial aviation partners who fly medically stable children & adults for FREE. We have been humbly providing our services for 27 years assisting more than 108,000 patients who have flown over 15 million miles to 750+ medical facilities throughout the United States. We also provide our services to patients who need to travel internationally to receive specialized care.
Over the last several months, there has been an increase of flight requests for patients – children and adults – diagnosed with rare and ultra rare diseases. Our mission/flight coordinators, who are available 24×7, use our web-based system to schedule flight made possible by our 400+ volunteer pilots or commercial airline partners. These flights are completely FREE of charge to the patient & family for as long & as often as they need to fly.
Financial Patient Assistance
The WDA has some financial assistance opportunities. Please see the policy.
Social Security and disability benefits for Wilson disease
It is helpful to patients with mainly liver disease. Patients with severe neurological or psychiatric symptoms that render them unable to work or function normally may also qualify for disability benefits. Click here for more information.
Physician Contacts
Here is a list of physicians and institutions familiar with Wilson disease and/or accept Wilson disease patients. This list is not inclusive, if your area is not listed, please contact the WDA office at info@wilsonsdisease.org for more information.
Peer Support Contacts
Here is a listing of individuals who can offer support and information to those living with Wilson disease and their families. If you are willing to offer support to those in your area, please contact us at info@wilsonsdisease.org
