Patient Assistance Programs
The Wilson Disease Association offers information and resources to help patients and families manage the practical challenges of living with Wilson disease. This includes guidance on financial and disability support programs available in the U.S., as well as prescription drug assistance options offered to individuals both in the U.S. and internationally.
Each section below outlines the types of support available and how to learn more or apply. For additional assistance contact Support@wilsonsdisease.org
Drug assistance in US
Orphalan U.S. Patient Support Program for CUVRIOR®: Navigator Program
For more information about treatment with CUVRIOR® (trientine tetrahydrochloride) and patient support offerings, please visit www.cuvrior.com.
Orphalan is offering the Navigator Program™ to assist patients with Wilson Disease who have been prescribed CUVRIOR® (trientine tetrahydrochloride). This no-cost program provides education and financial assistance to patients throughout their treatment journey.
The Navigator Program™ includes:
- Dedicated Care Coordinators to help patients navigate the insurance authorization process and provide access support
- Quick Start Program to enable eligible patients to start on CUVRIOR® for a limited time while waiting for insurance appeals to be processed
- Co-pay assistance for eligible, commercially insured patients to reduce their monthly payment to as little as $0
- Patient Assistance Program to help eligible patients who are uninsured or underinsured for CUVRIOR®
- Education and support for patients and prescribers on the reimbursements process
If you are interested in learning more about the Navigator Program, you can visit CUVRIOR® Patient Support or call our care coordinator at
1-877-995-ORPH (6774).
US-ORPH-CUVR-25020 June 2025
Eton Pharmaceuticals US Patient Assistance Program for Galzin®: Eton Cares
For information about Galzin® (zinc acetate) capsules and our Eton Cares patient support program, please visit galzin.com or call 833-442-5946 to speak with our patient care coordinators at Anovo Specialty Pharmacy.
- $0 copay for commercially eligible patients*
- Quick start program to provide patients Galzin in as little as 24 hours
- Enhanced Patient Assistance Program for uninsured or underinsured patients, including Medicare
- Insurance specialists to assist with coverage needs
- Pharmacist consultation, refill reminders, and regular check-ins
Galzin is offered through Eton’s specialty pharmacy, Anovo Specialty Pharmacy.
- NPI: 1619213212
- Program Phone: 833-442-5946 | Fax: 855-813-2039
Galzin Assistance if you are on Medicare
If your claim for Galzin is rejected, here is a sample appeal letter your doctor can use to help you deal with Medicare or insurance coverage.
Bausch U.S. Patient Assistance Program for Cuprimine and Syprine: WD Rx Access
You can find more information on http://www.wdrxaccess.com
While WDRxAccess.com program website is no longer active, patients and physicians can access the patient assistance enrollment forms through the link above. Patients can call (888) 607-7267 for more assistance. It is important to know that patients need to re-enroll every year for patient assistance.
Beginning October 1, eligible Medicaid-only patients (who do not have Medicare or other medication coverage) and whose plans cease to cover Bausch Health products, may be able to access Syprine and Cuprimine through an enhanced Patient Assistance Program. Prescribing physicians and patients can find out more here.
Drug Assistance Outside the US
International Medication Assistance Program
The Wilson Disease Association (WDA) partners with MAP International (Medicine for All People) and pharmaceutical companies, including Bausch and Orphalan, to provide limited donations of Cuprimine®, Syprine®, and Cuvrior® to patients outside the U.S.
To apply, patients or their representatives should email Support@WilsonsDisease.org and provide the following information for their prescribing doctor:
- Doctor’s name
- Email address
- Phone number
- Mailing address
The WDA-MAP Coordinator, Ginta Ginaityte, will be the main point of contact for patients, working closely with MAP International to gather necessary information and coordinate communication with your prescribing doctor.
Important Note:
Patients may need to obtain import permits (NOCs) as required by their country to receive the medications. Shipments can take several months and are dependent on donations from pharmaceutical companies. In accordance with U.S. law, medicine cannot be shipped directly to the patient but will be sent to the doctor or another appropriate designated consignee (doctor, pharmacy, hospital, medical facility, or local non-profit organization). There may also be unforeseen delays due to the complexity of international customs rules and shipping, including refrigeration requirements for certain medications.
Your personal and medical information will be kept confidential throughout the process. If you have any questions about eligibility or the application process, please don’t hesitate to reach out to Ginta Ginaityte, the WDA-MAP Coordinator, at Support@WilsonsDisease.org.
Thank you for your patience and understanding as we work to support Wilson disease patients around the world.
Frequently Asked Questions
This program was inspired by the compassion and vision of Mary Graper, a long-time WDA leader. Nearly 20 years ago, she was contacted by the mother of a young girl in the Philippines who tragically passed away from Wilson disease due to lack of access to treatment. Determined to prevent such loss in the future, Mary helped establish a partnership between WDA and MAP International. Her legacy lives on through every patient helped by this program.
Shipping Trientine to India through MAP International
The WDA is no longer able to ship Trientine to India through MAP International due to Indian rules. If you have any questions please contact:
Dr Seema Alam
Prof Pediatric Hepatology
Department of Pediatric Hepatology
Institute of Liver and Biliary Sciences
D 1 Vasant Kunj
New Delhi 110070
seema_alam@hotmail.com
M +919540951008
Angel Flight NE
Angel Flight NEAngel Flight NE, a 501(c)3 nonprofit organization that coordinates free air and ground transportation for medically stable patients seeking medical care for healthcare conditions including rare and ultra-rare diseases that requires them to travel hundreds if not thousands of miles for the specialized care they need.
Our vital mission is made possible thru the generosity of our volunteer pilots and commercial aviation partners who fly medically stable children & adults for FREE. We have been humbly providing our services for 27 years assisting more than 108,000 patients who have flown over 15 million miles to 750+ medical facilities throughout the United States. We also provide our services to patients who need to travel internationally to receive specialized care.
Over the last several months, there has been an increase of flight requests for patients – children and adults – diagnosed with rare and ultra rare diseases. Our mission/flight coordinators, who are available 24×7, use our web-based system to schedule flight made possible by our 400+ volunteer pilots or commercial airline partners. These flights are completely FREE of charge to the patient & family for as long & as often as they need to fly.
Financial Patient Assistance
The WDA has some financial assistance opportunities. Please see the policy.
Social Security and disability benefits for Wilson disease
It is helpful to patients with mainly liver disease. Patients with severe neurological or psychiatric symptoms that render them unable to work or function normally may also qualify for disability benefits. Click here for more information.
Physician Contacts
Here is a list of physicians and institutions familiar with Wilson disease and/or accept Wilson disease patients. This list is not inclusive, if your area is not listed, please contact the WDA office at info@wilsonsdisease.org for more information.
Peer Support Contacts
Here is a listing of individuals who can offer support and information to those living with Wilson disease and their families. If you are willing to offer support to those in your area, please contact us at WDambassadors@wilsonsdisease.org
