Explore video and podcast content created for the Wilson disease community. This page features conversations, educational programs, webinars, meeting recordings, and other multimedia content for patients, caregivers, families, healthcare professionals, advocates, and partners.

These programs offer trusted information, community perspectives, and updates on Wilson disease care, treatment, research, and support.

Featured Series: Copper & Clarity

The Wilson Disease Association (WDA) has collaborated with Orphalan to create a new podcast series, “Copper & Clarity: Conversations About Wilson Disease.” The series brings together informed perspectives on Wilson disease through accessible conversations for patients, caregivers, healthcare professionals, and other members of the Wilson disease community.

Episode 1 is now available. New episodes will be released through December 2026, with links added to this page as they become available.

Across the series, conversations will explore topics related to Wilson disease care, treatment, research, and community support.

Release Schedule

Episode 1: Delayed Diagnosis: Missed, Dismissed, and Diagnosed

Release date: Now available

Featuring:
Michael L. Schilsky, MD, FAASLD — Director of the Wilson Disease Center of Excellence at Yale University Medical Center
Danette Roberson — Wilson disease patient and liver transplant recipient

In this episode, Danette shares her lived experience with a multiyear diagnostic journey, while Dr. Michael Schilsky offers a physician’s perspective on recognizing symptoms and navigating the path to diagnosis.

Episode 2: More Than Symptoms: Everyday Life with Wilson Disease

Release date: September 29, 2026

Featuring:
Jean Marie — Wilson disease patient
Kim Mercurio — caregiver and mother of Jimmy, who has Wilson disease

Episode 3: Mind, Mood, and the Copper Connection

Release date: November 3, 2026

Featuring:
Jason Margolesky, MD, FAAN — Director, Wilson Disease Center of Excellence at the University of Miami/Jackson Health System
Christina Lee, MD, MPH — Consultation-Liaison Psychiatrist, UC Davis Health; Wilson Disease Center of Excellence team member

Episode 4: Activating Your Voice: Self-Advocacy and Wilson Disease

Release date: December 4, 2026

Featuring:
Emily Zivin, MSW, LCSW — Social Worker, Northwestern Medicine Wilson Disease Center of Excellence
Arjun Ravichandra — Wilson disease patient

EL-PFDD Meeting Video

Watch WDA’s Externally Led Patient-Focused Drug Development meeting to hear directly from people living with Wilson disease, caregivers, family members, and other members of the Wilson disease community.

This meeting highlights the lived experiences, treatment priorities, and unmet needs shared by the Wilson disease community and helps inform regulators, researchers, clinicians, and drug developers working to advance Wilson disease care and treatment.

Copper Conscious Cookbook Webinar

The Copper Conscious Cookbook webinar offers practical guidance on copper-conscious nutrition for individuals and families affected by Wilson disease, recognizing nutrition as one component of Wilson disease management.

This educational program features discussion of copper-conscious eating, food choices, and related considerations for people living with Wilson disease.

New Guidance for the Diagnosis, Treatment, and Management of Wilson Disease

This webinar discusses updated guidance for the diagnosis, treatment, and management of Wilson disease.

The program provides information for patients, caregivers, and healthcare professionals about current approaches to recognizing, treating, and monitoring Wilson disease.

This webinar explains what copper-conscious eating can mean for people living with Wilson disease and offers practical guidance for patients, families, registered dietitian nutritionists, and clinicians.

The program can help community members better understand nutrition considerations that may be part of Wilson disease care.

This webinar explores gene therapy research in Wilson disease, including potential treatment approaches, clinical trial considerations, and what these developments may mean for the future of Wilson disease care.

Visit WDA’s YouTube channel for additional patient stories, past conference recordings, educational programs, and other videos from the Wilson disease community.