Join Us in Ann Arbor, Michigan!
Saturday, April 11th

We are excited to host the WDA Spring Support Symposium on April 11th at the DoubleTree by Hilton Ann Arbor North.

This special full-day event will feature presentations from the University of Michigan Wilson Disease Center of Excellence (COE) Team, along with meaningful conversations designed to bring patients and caregivers together as a community.

 A New Opportunity to Connect

This symposium is more than an educational event — it’s a new opportunity for patients and caregivers to connect, share, and learn from one another.

Whether you or a loved one were recently diagnosed or have been managing Wilson disease for years, this day is focused on helping you:

•  Build community with others who understand the journey
•  Hear directly from members of the University of Michigan COE team
•  Learn practical strategies for living well with Wilson disease
•  Gain insight from real patient experiences
•  Connect with the broader Wilson disease community

Our focus is on everyday life with Wilson disease — support, adherence, recovery, and resilience.

Patient Perspectives: Real Stories, Real Strength

You’ll hear directly from fellow WD patients who will share their experiences with:

•  Medication adherence and staying on track with treatment
•  Participating in clinical trials
•  Recovering from devastating symptoms at diagnosis
•  Building stability and reclaiming quality of life

These powerful stories highlight hope, perseverance, and the importance of community support.

Lunch & Meet the COE and WDA Leadership

During lunch, you’ll have dedicated time to:

• Meet members of the University of Michigan Wilson Disease Center of Excellence Team
• Connect with WDA Board of Directors members and team
• Discover ways to get involved and stay connected within the community

Round Table Experiences

We are excited to offer interactive Round Table sessions designed to provide practical information and open dialogue.

We’ve invited:

• Eton Pharmaceuticals (Galzin® – zinc acetate)
• Orphalan (Cuvrior® – trientine tetrahydrochloride)
• Specialty pharmacies that distribute Wilson disease medications

During these sessions, you’ll have the opportunity to:

•  Ask questions about medications and access
•  Learn how specialty pharmacies support patients
•  Understand available resources and patient assistance programs
•  Engage in meaningful conversation in a small-group setting

These round tables are designed to be informative, approachable, and supportive.

Registration Fees

• $20 – Patients, caregivers, and children over age 18
• Free – Children under age 18
• $150 – Professionals (HCPs, industry, researchers)

Hotel & Travel Information

The DoubleTree by Hilton Ann Arbor North is offering symposium participants a special hotel rate of $144 per night. A limited number of rooms are available at this rate.

Use this link to register for discounted hotel rooms.

Attendees are responsible for making their own hotel and travel arrangements.

Important Dates

Registration Deadline:
Friday, April 3

Agenda coming soon!

Join Us This Spring

The WDA Spring Support Symposium is a welcoming space to learn, connect, and grow together. We look forward to gathering in Ann Arbor to strengthen our community, meet new friends, and support one another in living well with Wilson disease.

Questions? Email info@wilsonsdisease.org