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The 2024 Wilson Disease Association Annual Conference will be held in Charlotte, NC at the Canopy by Hilton on October 4-6.

After five years, we are excited to bring this program to you in person! This event will bring together the incredible Wilson disease community for a day filled with learning and relationship building. The Annual Conference is an opportunity for people living with Wilson disease and their families to come together, often for the first time, to gain practical knowledge on how to manage their health and live their best quality of life possible.

The “Onward and Upward” theme embodies the spirit of resilience and determination that defines the Wilson disease community. Throughout the conference, we will explore the latest advancements in diagnostics, disease management, treatment options, emerging therapies and patient support, with a focus on moving forward together towards a brighter future.

The essentials:

What is the cost?

Early Event registration is free for Members and Children under age 18, $50 for non-Members and $100 for Professionals. It includes the Friday meet and greet, which includes beverages and heavy appetizers, and Saturday breakfast and lunch. The Saturday dinner reception is $50. Gold and Copper level WDA members get discounted or complimentary Saturday dinner. Be sure to check your Membership!

*All prices will increase after August 4th.

Where do I register for the Conference?

Use this secure link.

Hotel Registration:

Canopy by Hilton is offering discounted room rates to Conference attendees from October 3 to October 7 (in case you might like to extend your trip). The special WDA room rates will be $149 per night plus tax.  Handicap access rooms available. Special room rates only available directly through this link to the Hilton website.

*These rates are only available until September 4th. As a reminder, attendees are responsible for making their own travel arrangements.

Patient Assistance:

The WDA is making every effort to plan an affordable and inclusive event. If you need assistance, please visit: https://wilsondisease.org/living-with-wilson-disease/patient-assistance/

Membership:

If you’re not a WDA member or need to renew your membership please see: https://wilsondisease.org/get-involved/become-a-member/

Still have questions? Contact us at Events@Wilsonsdisease.org

Good to know:

What is the Sunday breakfast meet-up?

Another reason to register early: this year, we are introducing Sunday breakfast meet-ups. These voluntary gatherings offer an opportunity to interact with our valued industry partners.  The aim is to gather insights from diverse experiences, whether as a patient or caregiver, to inform clinical trial design and the understanding of new therapies.  Breakfast is on us and as a token of our gratitude for your input, a $100 gift card will be given to participants.  Space is limited to 40 people, so timely registration is advised.

Friday and Saturday night features

As in past in-person conferences, the weekend will kick off with a Friday night meet and greet reception.  This year’s Saturday night dinner will take place off-site at nearby Legion Brewery showcasing food with a Southern flair! Shuttle service will be provided.

What is the agenda for Saturday’s full day of learning?

Program topics and speaker list will be released as soon as it’s finalized. Preliminary topics range from emerging diagnostic tools and novel therapies to WD perspectives from a hepatologist, neurologist and psychiatrist, and gene therapy 101 and clinical trial participation to getting your medication and navigating a low copper diet. The agenda is designed to give you the most up-to-date information and equip you to live well with Wilson disease.

Why Charlotte, NC? 

The Wilson Disease Association is thrilled to introduce our community to our newest WD Center of Excellence (CoE)!  The North Carolina CoE is located at Atrium Health Wake Forest Baptist Medical Center in Winston-Salem – a short drive from Charlotte.  You’ll have the opportunity to meet director Dr. Sean Rudnick and members of his medical team.

Are children welcome? 

Yes, it’s free of charge for children under age 18. New this year is special programming to keep children entertained during Saturday’s day of learning.

Start planning now! 

October is the perfect time to visit North Carolina!  Canopy by Hilton is offering discounted room rates to Conference attendees before and after the event if you’d like to extend your trip.

We can’t wait to see you and gather together again as a community at the WDA 2024 Annual Conference.  Onward and Upward!

If you have additional questions or difficulty with registration, please contact us at Events@wilsonsdisease.org
If you are interested in sponsoring this year’s conference, please visit our sponsorship page.

Thank you to our top tier conference sponsors!

Copper Sponsors

Gold Sponsor

Silver Sponsors

Rachel & Jonathan Albert
Rachel & Drew Katz
Rhonda & Bill Rowland
Steve Walsh

Donations

Your support allows the WDA to maintain this website, produce educational materials, support research, and hold meetings for people living with WD, their families, and the healthcare community.

Membership

As a member, you have the opportunity to communicate your concerns, share your experiences, learn about the most recent advances in Wilson disease treatment and research, and contribute to important decisions that need to be made so the WDA can be a strong patient advocacy group

WILSON DISEASE ASSOCIATION

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