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Registration is now closed. We look forward to seeing the 100+ WD patients and families who registered in Charlotte!

The 2024 Wilson Disease Association Annual Conference will be held in Charlotte, NC at the Canopy by Hilton on October 4-6.

After five years, we are excited to bring this program to you in person! This event will bring together the incredible Wilson disease community for a day filled with learning and relationship building. The Annual Conference is an opportunity for people living with Wilson disease and their families to come together, often for the first time, to gain practical knowledge on how to manage their health and live their best quality of life possible.

The “Onward and Upward” theme embodies the spirit of resilience and determination that defines the Wilson disease community. Throughout the conference, we will explore the latest advancements in diagnostics, disease management, treatment options, emerging therapies and patient support, with a focus on moving forward together towards a brighter future.

The essentials:

What is the cost?

Event registration is free for Members and Children under age 18, $50 for non-Members and $100 for Professionals. It includes the Friday meet and greet, which includes beverages and heavy appetizers, and Saturday breakfast and lunch. The Saturday dinner reception is $50. Gold and Copper level WDA members get discounted or complimentary Saturday dinner. Be sure to check your Membership!

Where do I register for the Conference?

Registration is now closed.

Hotel Registration:

The WDA room block at Canopy by Hilton has been filled, but we have two more great options for you! There are rooms remaining at the conference hotel that can be booked with a WDA 15% off discount code that’s good through September 2 or until all rooms are booked. The 15% discount is already applied when you use this link.

The WDA has obtained additional rooms for $149 a night at nearby Courtyard by Marriott. It’s a 7-minute walk or 2-minute drive to the Canopy by Hilton where the conference is being held. Special room rates only available through this link.

*These rates are only available until September 2nd, or until rooms are sold out. As a reminder, attendees are responsible for making their own travel arrangements.

Patient Assistance:

The WDA is making every effort to plan an affordable and inclusive event. If you need assistance, please visit: https://wilsondisease.org/living-with-wilson-disease/patient-assistance/

Membership:

If you’re not a WDA member or need to renew your membership please see: https://wilsondisease.org/get-involved/become-a-member/

Still have questions? Contact us at Events@Wilsonsdisease.org

Good to know:

What is the Sunday breakfast meet-up?

SESSION IS FULL! WE APPRECIATE THE INTEREST IN THIS NEW OPPORTUNITY.

Another reason to register early: this year, we are introducing Sunday breakfast meet-ups. These voluntary gatherings offer an opportunity to interact with our valued industry partners.  The aim is to gather insights from diverse experiences, whether as a patient or caregiver, to inform clinical trial design and the understanding of new therapies.  Breakfast is on us and as a token of our gratitude for your input, a $100 gift card will be given to participants.  Space is limited to 50 people, so timely registration is advised.

Friday and Saturday night features

As in past in-person conferences, the weekend will kick off with a Friday night meet and greet reception.  This year’s Saturday night dinner will take place off-site at nearby Legion Brewery showcasing food with a Southern flair! Shuttle service will be provided.

What is the agenda for Saturday’s full day of learning?

Preliminary topics range from emerging diagnostic tools and novel therapies to WD perspectives from a hepatologist, neurologist and psychiatrist, and gene therapy 101 and clinical trial participation to getting your medication and navigating a low copper diet. The agenda is designed to give you the most up-to-date information and equip you to live well with Wilson disease. Click here for final Speakers and Topics agenda.

Why Charlotte, NC? 

The Wilson Disease Association is thrilled to introduce our community to our newest WD Center of Excellence (CoE)!  The North Carolina CoE is located at Atrium Health Wake Forest Baptist Medical Center in Winston-Salem – a short drive from Charlotte.  You’ll have the opportunity to meet director Dr. Sean Rudnick and members of his medical team.

Are children welcome? 

Yes, it’s free of charge for children under age 18. New this year is special programming to keep children entertained during Saturday’s day of learning.

Start planning now! 

October is the perfect time to visit North Carolina!  Canopy by Hilton is offering discounted room rates to Conference attendees before and after the event if you’d like to extend your trip.

We can’t wait to see you and gather together again as a community at the WDA 2024 Annual Conference.  Onward and Upward!

If you have additional questions or difficulty with registration, please contact us at Events@wilsonsdisease.org
If you are interested in sponsoring this year’s conference, please visit our sponsorship page.

Thank you to our top tier conference sponsors!

Copper Sponsors

Gold Sponsor

Silver Sponsors

Abramson Family Foundation, Inc.
Rachel & Jonathan Albert
Rachel & Drew Katz Foundation
The Daughters of Jack Levin
Rhonda & Bill Rowland
Edward & Linna Ding Tabor
Steve Walsh

Donations

Your support allows the WDA to maintain this website, produce educational materials, support research, and hold meetings for people living with WD, their families, and the healthcare community.

Membership

As a member, you have the opportunity to communicate your concerns, share your experiences, learn about the most recent advances in Wilson disease treatment and research, and contribute to important decisions that need to be made so the WDA can be a strong patient advocacy group

WILSON DISEASE ASSOCIATION

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