Wilson Disease Association Board of Directors

Jean Perog

President
Merritt, B.C. Canada
Email: [email protected]

I enjoyed a fulfilling career for over 10 years in public practice as a CPA,CA and over 20 years with Interior Health Authority in various management positions in Finance, Information Technology and Primary Health Care.

I became a board member of WDA as both my brother and I have Wilson Disease and I wanted to get involved to help ensure no one need suffer from Wilson Disease.

On retirement, I was determined to continue service to my community, using the skills and knowledge that served me so well in my career. I currently volunteer with the Merritt & District Hospice Society, Municipal Pension Retirees Association (MPRA) and Community Futures Nicola Valle (CFNV) and the Nicola Valley Health Care Endowment Foundation.

When I am not volunteering, my passion is camping with my wonderful husband and freshwater fishing.

Rachel Albert

Vice President
Middlebury, Connecticut

Volunteering has been an important part of my life since childhood. Over the years, I have committed my time and energy to numerous non-profit organizations. I majored in psychology and graduated Magna Cum Laude from Amherst College. I also earned an M.P.H. in Geriatrics and Gerontology from Columbia University. I am married to an amazing man and the proud mom of two adult children and a yellow lab. I love to sing, read, learn new things, meet new people and spend time with my family. I enjoy participating on the Board and I am happy to be of assistance to patients, their families, and caregivers.

Steve Walsh

Treasurer
Boulder, Colorado
Stephen lives in Boulder, Colorado and has a daughter with WD. He went to college at the University of Colorado and graduated with a B.S. in finance.

Carol Terry

Co-Founder and Secretary
Hampton, Virginia
Email: [email protected]

Carol graduated from the University of Utah in 1976 with a B.A. degree in Accounting, and retired after 31 years Federal Government civil service in 2002 as a supervisory GS-15.  She was diagnosed in 1973 with Wilson disease, which resulted in neurological impairment.  She was misdiagnosed for almost two years, and her experience has been documented in an article she wrote which was published in the American Journal of Nursing, as well as an article written about her by Berton Roueche for New Yorker magazine.  She helped found the Wilson Disease Association in 1983 and served as its President for ten years.  She has also served as Vice-President and Treasurer and has been a member of the WDA Board since its founding.

Mary L. Graper

Vice President of Scientific Affairs
Milwaukee, Wisconsin
Email: [email protected]

Mary has over 25 years experience as a volunteer leader, and is recognized for her creativity, organizational and leadership skills. She holds a B.S. degree in Education from the University of Wisconsin-Milwaukee. She owns and manages investment real estate in Wisconsin along with her husband. Two of her three children are Wilson’s patients. Mary joined the WDA Board of Directors in 2000.

Drew Katz

Cherry Hill, New Jersey

Drew Katz is a successful entrepreneur whose passion for giving has made him a generous philanthropist as well. He is guided by the words that drove his Dad, Lewis Katz: “You can’t live a perfect day without doing something for someone who will never be able to repay you.” (John Wooden). He is the CEO of one of the nation’s fastest-growing out-of-home advertising companies, Interstate Outdoor Advertising. In 2003, Drew created The Rachel & Drew Katz Foundation to lift the hopes and aspirations of those facing difficult challenges.

Drew’s current board memberships include the National Constitution Center, Temple University, Dean’s Advisory Council at Stanford Law School, Outdoor Advertising Association of America, N.J. Pandemic Relief Fund and Wilson Disease Association International.

Drew graduated from George Washington University in 1993 and received his J.D. from Stanford Law School in 1996. In 2013, Drew married Rachel Lauren Snyder. They have two children, Maya and Leo.

Rhonda Rowland

Atlanta, Georgia
Communicating medical and health news and information has been my lifelong career.  My compassion and interest is a direct result of being diagnosed with Wilson disease at the age of 21 while I was a senior in college.  I earned my Communication Arts degree at the University of Wisconsin-Madison where an internship at the UW’s Cancer Information Service started me on my career path.  After marrying my college sweetheart we moved to Atlanta where I had a medical reporting career at CNN for 16 years.  I left my full-time career to raise my two children and continued doing freelance medical video production and consulting.  I love golfing, biking, skiing, walking the beach, reading and spending time with family and friends.  I got involved in the Board so I could use my communication skills to help raise awareness for WD.

Patti Paulin, RN

Canton, Michigan

Patti Paulin has worked at University of Michigan for 30 years, 20 years in Neurosurgical ICU and floated to ER as a contingent Nurse. She has worked for the last 10 years in Liver Transplant Clinic and have been the Wilson Disease Nurse Coordinator.

Judi Keller

Executive Director
Lakeland, Florida
Email: [email protected]

Judi Keller likes being a change manager for small organizations that are growing.  She served as Executive Director of several organizations in Wisconsin before starting with the Wilson Disease Association.
 
She demonstrated success in leadership and fostered growth and confidence in past organizations.  She is highly organized with expertise in solution development. Her management style for non-profit successes is an approachable one with an entrepreneurial mindset.

Her education includes a double major in mathematics and businesses administration which led to  graduate work in Urban planning, advanced real estate courses through CCIM and an MBA.

She has many interests but at this time she is weight training, hydroponic gardening, target shooting, swimming, loves dogs and hopes to acquire the perfect B+ RV.