Volunteer Opportunities

Call or email for more information 414-961-0533 or info@wilsonsdisease.org

Support and information

We hope the WDA has helped you in your Wilson disease journey. If so, would you like to pay it forward and be a resource to help others who are newly diagnosed, or those seeking information? Some people are just looking for someone to listen. Could that be you?

Social media

Facebook, Instagram, LinkedIn, YouTube: these are the WDA’s active social channels. If you spend a lot of time on these social channels, you likely have ideas of how we can use them to raise awareness for Wilson disease. We’d love to have you join our team!

Marketing

Do you have experience with marketing or developing a long-term communications plan? We can use help with creative outreach to bring awareness to our various programs and events.

Editing and writing assistance

We can always use help in writing articles for our Copper Connection newsletter or website content. If you’re not a writer, but enjoy copy editing we can use your help too.

Fundraising

Do you have a heart for fundraising? Ideas of ways to bring attention to Wilson disease that can also raise funds? Do you have experience writing grants? We’d be happy to have you join our team!

Donations

Your support allows the WDA to maintain this website, produce educational materials, support research, and hold meetings for people living with WD, their families, and the healthcare community.

Make a Donation

Donations

Donating to the Wilson Disease Association (WDA) supports research, patient care, education and awareness for this rare genetic disorder. Your contribution helps fund scientific studies, patient support programs, education efforts, advocacy and raising awareness. Since Wilson disease is often misdiagnosed and misunderstood, your donation has a direct and meaningful impact on those affected.

Peer to Peer Fundraiser

Join us in supporting the Wilson Disease Association by creating your own peer-to-peer fundraiser on GiveButter!

Here’s how it works:

  1. Create Your Fundraiser: Set up a personalized campaign page on GiveButter in just a few clicks.
  2. Share with Your Network: Rally your friends, family, and colleagues to donate and help spread the word.
  3. Track Your Impact: Watch your fundraising progress in real time and celebrate each donation.

Contact the Administrative Program Coordinator at admin@wilsonsdisease.org to help connect your GiveButter fundraiser to the WDA.

We Are Wilsons

Share Your Story

We’re collecting patient stories and photos to feature on our website, Facebook, and Instagram. Wilson Warrior stories inspire and connect our community, and we’re making it easier than ever for you to share yours.

If you’d like to share your personal story, email it to info@wilsonsdisease.org. Our communications team will work with you on copy editing and photo selection.

Facebook Fundraiser

Start your own fundraiser on Facebook
If you are a Facebook user it is easy to have a fundraiser. The Wilson Disease Association (WDA) is registered with Facebook and any user can set up a fundraiser in minutes and then share it with their friends. Consider it for your birthday or another day important to you and be sure to share your WD story with your followers. Please tell us if you do a Facebook fundraiser since Facebook keeps these fundraisers anonymous when distributing funds. The WDA receives the donated funds about three months after the fundraiser ends.

WILSON DISEASE ASSOCIATION

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