Recent Posts
THE STORY OF MY WILSON DISEASE: AGE 8 TO 53
By Barbara Noci I was born on the 6th of April 1972 in Empoli, a little city near Florence in [...]
Travis’s Story of Wilson Disease
Rare and Rural By Rhonda Rowland, WDA President We all love a small town. Images come to mind of holiday [...]
Newborn Screening for Wilson Disease
A 25-year dream coming close to reality By Alice Williams, WDA Communications Director Since the 1960s, the United States has [...]
Can Copper be Absorbed Through the Skin?
By Edward Tabor, MD, WDA Board Member The main source of copper for humans is food, and Wilson disease patients [...]
They Said “Yes” to Gene Therapy
By Rhonda Rowland, WDA PresidentWe continue the story of two trailblazers who are among the first Wilson disease (WD) patients [...]
Meet the Inaugural Gene Therapy Candidates
By Rhonda Rowland, WDA President The two gene therapy clinical trials for Wilson disease (WD) launched by Ultragenyx and [...]
Shipping Trientine to India through MAP International
The WDA is no longer able to ship Trientine to India through MAP International due to Indian rules. If you have any questions please contact:
Dr Seema Alam
Prof Pediatric Hepatology
Department of Pediatric Hepatology
Institute of Liver and Biliary Sciences
D 1 Vasant Kunj
New Delhi 110070
seema_alam@hotmail.com
M +919540951008
