Wilson Disease patients share a wealth of information in their stories.  Some stories highlight the desperate attempt to get a diagnosis and how long it can take.  Others tell of a sudden catastrophe and loss of life.  The symptoms are like snowflakes because no two patients or stories are alike.

These stories can benefit other patients so they can see that they are not alone.  For health practitioners, the stories prove that Wilson disease patients present in myriad ways. They should not discount.   An arm tremor in a young person could indicate Wilson disease.

The patients that share stories are brave, and they help all other patients. Contact the WDA if you want to share your story here.  The WDA reserves the right to edit stories submitted for grammatical correctness.

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