We Are Wilson’s: Stories

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Wilson Disease patients share a wealth of information in their stories.  Some stories highlight the desperate attempt to get a diagnosis and how long it can take.  Others tell of a sudden catastrophe and loss of life.  The symptoms are like snowflakes because no two patients or stories are alike.

These stories can benefit other patients so they can see that they are not alone.  For health practitioners, the stories prove that Wilson disease patients present in myriad ways. They should not discount.   An arm tremor in a young person could indicate Wilson disease.

The patients that share stories are brave, and they help all other patients. Contact the WDA if you want to share your story here.  The WDA reserves the right to edit stories submitted for grammatical correctness.

 

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Donations

Why Your Donation Matters

Your donation to the Wilson Disease Association does more than keep the lights on—it powers education, awareness and action. With your support, we’re able to maintain vital resources like this website, produce trusted educational materials, fund critical research and host events that bring together patients, caregivers and medical professionals. Most importantly, your generosity helps raise awareness so more people are diagnosed earlier and treated effectively—giving them the best chance at a full, healthy life.

When you give, you’re not just supporting an organization—you’re joining a powerful movement to change the future of Wilson disease. You’ll stay informed about the latest in research and treatment, gain access to exclusive webinars and educational resources, and remain connected to a global community that understands. For more than 40 years, our shared commitment has fueled advances in care, deepened understanding, and amplified the voices of those affected by Wilson disease. Together, we’re building a stronger, more informed future.

WILSON DISEASE ASSOCIATION

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