Recent Posts
Travis’s Story of Wilson Disease
Rare and Rural By Rhonda Rowland, WDA President We all love a small town. Images come to mind of holiday [...]
Newborn Screening for Wilson Disease
A 25-year dream coming close to reality By Alice Williams, WDA Communications Director Since the 1960s, the United States has [...]
Can Copper be Absorbed Through the Skin?
By Edward Tabor, MD, WDA Board Member The main source of copper for humans is food, and Wilson disease patients [...]
They Said “Yes” to Gene Therapy
By Rhonda Rowland, WDA PresidentWe continue the story of two trailblazers who are among the first Wilson disease (WD) patients [...]
Meet the Inaugural Gene Therapy Candidates
By Rhonda Rowland, WDA President The two gene therapy clinical trials for Wilson disease (WD) launched by Ultragenyx and [...]
The 100th Registry Participant
By Rhonda Rowland, WDA President I’m study participant number 30 in the Wilson Disease (WD) Patient Registry. That’s not exciting. [...]
Market Research Survey
A market research study is seeking individuals with Wilson’s Disease to participate in a 60-minute telephone interview about their treatment experiences. The feedback provided will be used to help understand where there is still need for improvement in Wilson’s Disease treatment from the patient perspective. The interviews will also include discussion of a hypothetical new treatment option to understand if there is a fit between what the treatment may be able to offer and the needs in Wilson’s Disease. The hypothesized treatment is not currently in clinical development.
If you or someone you care for has been diagnosed with Wilson’s Disease you may be eligible to participate. Those who qualify and complete the interview will receive $100 for their time and participation. All information and responses will remain confidential.
To see if you qualify or to get more information please fill out this simple form: https://forms.gle/3jxnsTEV3CNf3GjS7
If you have questions or want more information you may also contact Erin M. at erin@pinpointpatientrecruiting.com or 202-350-0933.