Important Update: Transitioning from Membership to Supporter Model
We want to inform you about an important change at the Wilson Disease Association (WDA). To better serve our community and comply with legal requirements, we are transitioning from a membership structure to a supporter model. This change allows us to continue our mission effectively while maintaining the strong connection we’ve built with you over the years.
Why This Change is Necessary
New York State law requires nonprofit organizations with formal memberships to hold annual in-person meetings with a voting quorum of at least 10% of members. Given the geographically diverse nature of our community, meeting these requirements has become increasingly challenging. Transitioning to a supporter model simplifies our operations while ensuring we remain aligned with nonprofit best practices.
What This Means for You
As a WDA supporter, you will continue to receive all the same benefits as before—just without the requirement for an annual meeting and voting. You will still have access to:
✅ Educational resources and webinars
✅ Invitations to WDA events and conferences
✅ Updates on Wilson disease research and advocacy efforts
✅ Opportunities to connect with the Wilson disease community
A Stronger Future Together
For over 42 years, our dedicated community has played a crucial role in advancing Wilson disease research, improving patient care, and raising awareness. This transition helps us focus on what truly matters—supporting you and driving meaningful change.
We appreciate your continued involvement and support! More details about the supporter model will be shared soon. If you have any questions, feel free to contact us at admin@wilsonsdisease.org.
Thank you for being part of the Wilson Disease Association!
